ASF Walk - Austin, TX

Hello Texas Advocates,

An opportunity for rare disease advocates came to our inbox so we wanted to pass it along to you all – interested or active advocates for AS!

From Amber N. Freed, Founder, CEO & Mother - SLC6A1 Connect

I’m currently looking to connect with rare disease advocates across Texas to help plan the first Rare Texas Day. This event will focus on effective advocacy at the state level, including engagement with policymakers, hospital systems, and other key stakeholders. We are aiming to hold the event in Spring 2027 and are beginning to gather individuals who may be interested in helping shape and participate in this effort.

If you’re willing, would you mind sharing the link below with colleagues or community members in Texas who may want to get involved? Thank you so much for helping us build a stronger rare disease advocacy community in Texas.

Link: https://secure.everyaction.com/0OcqrHD0vUCCkvNwlTPuWQ2

Sincerely,

FAST & ASF | Anglemanadvocates.org

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