Cure ADSSL1

Save the Date Oct 7th!

Join us in our mission to raise vital funds for the discovery of treatments for our children and individuals impacted by ADSSL1 Myopathy. You can make a difference by purchasing tickets, sponsoring a package, or donating through the provided link: https://one.bidpal.net/wavesofhope/welcome. Every contribution will directly benefit Biotech CureRareDisease, a non-profit organization dedicated to finding a cure. Together, let's pave the way towards a brighter future for those affected by rare diseases.

Cure Rare Disease’s goal is to develop life-saving, advanced modalities to treat all rare and ultra-rare diseases like ADSSL1.

Learn more about our pipeline and progress.
https://bit.ly/3uZWXgj

Thank you Park St. Claire community for supporting Cure ADSSL1 org by hosting a community event and raising $18,000 to advance the research!

Cure ADSSL1 is a non-profit organization started by the Baweja family in 2022. Both our son and daughter have been diagnosed with an ultra-rare neuromuscular disease - ADSSL1 myopathy. Our mission is to find a cure for ADSSL1 myopathy by accelerating the research.

Cure ADSSL1 is a 501(c)(3) public charity, founded in 2022 and based in Los Angeles, CA. The purpose of our group is to spread awareness, work with researchers to develop a treatment, raise funds for research efforts and support each other in the ADSSL1 myopathy community.