Scramble for Syngap

Today on Squawk Box, Becky Quick shared her family’s SYNGAP1 journey and her daughter’s diagnosis. Hearing a parent speak so openly about life with a rare disease on a national platform is incredibly powerful and deeply meaningful to our Cure Syngap1 and Scramble for Syngap community.

Visibility matters. Stories matter. And when families bravely share their truth, it brings awareness, compassion, and momentum to the work being done to advance research and treatments.

We’re grateful for voices like Becky’s and for every family who continues to show up, speak out, and advocate for our children. Together, we are making a difference. ⛳💙

Today, CNBC Squawk Box host Becky Quick shared publicly that her daughter lives with SYNGAP1 and introduced CNBC Cures, a new initiative focused on raising awareness for rare diseases and accelerating progress toward treatments and cures for the 30 million Americans affected.

We are grateful to Becky and her family for their openness and leadership. Visibility matters. Awareness strengthens community, advances research, and brings hope to families impacted by SYNGAP1.

Learn more about SYNGAP1 and the work of CURE SYNGAP1:
👉 https://curesyngap1.org

Related coverage and conversations:
• CNBC Cures initiative announcement: https://curesyngap1.org/cnbc-cures-launch
• CNBC Cures website: https://curesyngap1.org/cnbccures
• Becky Quick shares her family’s journey:
https://curesyngap1.org/cnbcBecky
• CNBC news segment: https://curesyngap1.org/cnbcVideo
• Squawk Pod podcast - The Path with Becky Quick: Life with a Rare Disease 1/8/26: https://curesyngap1.org/squawkpod
• Today Show segment: https://curesyngap1.org/todayshow

CURE SYNGAP1 is proud to stand with the global SYNGAP1 community as we work toward meaningful treatments and a cure.

Season's Greetings from the Scramble for Syngap team! 🎄
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Season’s Greetings from the Scramble for Syngap 🎄 As we reflect on this holiday season, our hearts are full of gratitude for each of you who continue to support the Scramble for Syngap and the mission to advance meaningful treatments for SYNGAP1.

⛳️ Just 1 more sleep until the 4th Annual Scramble for Syngap!

Tomorrow’s the big day - golfers, families, and supporters all coming together for fun, community, and an amazing cause! Grab your clubs, bring your best swing, and let’s make it a great day on the course!

We look forward to seeing you bright and early! ☀️