Sock-it 2 Hunter Syndrome

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Amazing news from RegenxBio! They are expanding their gene therapy trial to boys with Hunter Syndrome ages 5-18! 💜💜💜

REGENXBIO Announces Continued Progress and Expansion of Clinical Development Program for RGX-121 for the Treatment of Mucopolysaccharidosis Type II (MPS II) | REGENXBIO Inc. - Ongoing Phase I/II trial to enroll up to 6 additional patients in Cohort 2 while planning for next steps in program; further trial updates expected by the end of 2020 - New IND for Phase I/II trial cleared by FDA to evaluate RGX-121 in patients with severe MPS II ages 5-18 years old and

2 years and 27 days... that's how old Ethan was when he was diagnosed with MPS II Hunter Syndrome.

We are posting this to raise awareness for , , and the “signs” that lead to diagnosis. Our first sign something was awry was when Ethan’s speech was delayed and he suffered from constant ear infections. Help us spread the word and , leading up to MPS Awareness Day on May 15, 2020!

Copy and paste this text with your own photo, signs, and age of diagnosis. Try and tag FIVE (or six 😁) more people and challenge them to do the same!