Scleroderma Outreach Northwest
Committed to those afflicted by Scleroderma, their families, caregivers, and medical providers.
06/29/2026
Today is World Scleroderma Awareness Day.
Scleroderma is a rare autoimmune disease that affects thousands of individuals and families, yet it remains widely misunderstood. Today, we stand with everyone living with this disease, honor those we've lost, and renew our commitment to raising awareness, supporting research, and building a stronger community.
Every conversation helps. Every shared story matters. Every act of support brings us one step closer to better treatments—and ultimately, a cure.
If you or someone you love is living with scleroderma, know that you are not alone. Scleroderma Outreach Northwest is here to provide education, support, resources, and connection.
Together, we can turn awareness into action.
đź’™ Learn more, get involved, or support our mission, visit the link in the first comment below.
06/27/2026
Scleroderma is hard to diagnose, but understanding the process can help. Swipe through to learn more about the signs that lead doctors to suspect and confirm a scleroderma diagnosis.
June is Scleroderma Awareness Month. That's why we're sharing information like this all month long, since knowing what scleroderma looks like and how it's diagnosed can make a real difference for someone seeking answers.
This month, Scleroderma Outreach Northwest, the Scleroderma Research Foundation, the Scleroderma Foundation of California, and the Scleroderma Foundation of Greater Chicago are uniting forces—because when more voices join us to , we can get louder and reach farther than ever before.
There's still time to get involved and make a difference this Scleroderma Awareness Month. Learn more about in the first comment below.
“I because awareness is still very limited, and many patients struggle with delayed diagnosis, fear, and uncertainty,” says Naina S. (dx 2006).
Watch the video to hear her share what life with scleroderma looks like, and how she's found strength along the way.
Naina’s experience reflects what so many living with scleroderma know too well, and why raising awareness this June is so critical.
Uplifting the voices of those in this community is at the core of Scleroderma Awareness Month—so that every story, every voice, and every share brings us closer to a world where nobody is left to face this disease without answers.
This month, Scleroderma Outreach Northwest, the Scleroderma Research Foundation, the Scleroderma Foundation of California, and the Scleroderma Foundation of Greater Chicago are uniting forces—because when more voices join us to , we can get louder and reach farther than ever before.
Ready to make an impact this Scleroderma Awareness Month? Learn more about using the link in the first comment below.
06/24/2026
Team Captain Tuesday Spotlight: Brittany Stone
This Team Captain Tuesday, we're proud to recognize Brittany Stone, a dedicated leader, advocate, and scleroderma warrior who continues to make a difference throughout our community.
Brittany wears many hats within the Scleroderma Foundation of California. She serves as a member of our Board of Directors, support group co-leader and helps lead the planning committee for A Million Steps for Scleroderma LA/OC, and is a passionate Team Captain committed to raising awareness and funds for those affected by scleroderma.
Diagnosed with scleroderma at a young age, Brittany has transformed her personal journey into a mission of hope, support, and advocacy. Whether she's helping plan our walk, supporting fellow patients, or sharing her story, Brittany demonstrates what it means to turn challenges into purpose.
As we celebrate Scleroderma Awareness Month, we invite you to join Brittany in making a difference. Every dollar raised helps support patient education, support programs, advocacy efforts, and research toward better treatments and a cure.
Thank you, Brittany, for your leadership, dedication, and unwavering commitment to our community.
Help support Brittany's fundraising efforts and join her team as we take A Million Steps toward a cure.
Find a walk near you at myscleroderma.org/walks
Join us this Saturday at A Million Steps for Scleroderma LA/OC in La Mirada, CA AmillionLAOC.myscleroderma.org
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14401 Issaquah-Hobart Road , Suite 103
Issaquah, WA
98027