JC Tile, LLC

Pray for our nephew. Share his story

https://www.facebook.com/profile.php?id=100091846375049&mibextid=LQQJ4d

Prayers for Arthur, Hope for a Cure Arthur's journey with his terminal illness, Krabbe Disease. Please follow and help bring awareness.

Day +18: My heart aches as Arthur's WBC count remains stagnant at 0.5. The doctors emphasize that true engraftment won't be considered until his absolute neutrophil count reaches 0.500 for three consecutive days. At this moment, we find ourselves at a mere 0.21. Once again, his platelet levels have dropped, necessitating another round of platelet transfusion today. The latest revelation regarding the culture on his line only adds to the complexity of the situation, as it was identified as a strain of staphylococcus. The current antibiotic regimen, thankfully, covers this strain, but the more potent antibiotic has been discontinued. Instead, they will complete the remaining seven days of this treatment, specifically targeting the staphylococcus. The culture from yesterday hasn't shown any signs of growth yet, which brings a glimmer of hope.

To help boost Arthur's production, they have increased his neupogen steroid dosage to twice a day, although they have cautioned us to expect heightened agitation and potential bone pain as side effects.

Dr. Paul has expressed his belief that my symptoms originated from Arthur, considering that I change his diaper rather than relying solely on the nurses. This news, though bittersweet, carries a semblance of positivity. However, my prayer now is that I do not inadvertently reinfect him while I wait for my own healing.

Today, Pastor Freeman came to visit. In the depths of my being, I hold unwavering confidence that Arthur will be healed, in one way or another. The weighty realization, though, is that God's will may entail healing him in heaven rather than here on Earth. I hope those around me not to question the depth of my faith, for I genuinely believe that God is answering our prayers and will bring healing to my precious baby. Yet, I am acutely aware that not all my desires align with God's divine plan. My prayers now wrestle with the difficulty of shifting from selfish pleas for his healing to surrendering to God's will, no matter what form it may take. Even in the face of this internal struggle, I maintain hope that God will grant us the privilege of keeping Arthur in our lives for many more years to come.

Please, I implore you, continue to pray for my baby. We keep repeating the words, "Just a few more days," to him. I can't help but wonder how he feels, hearing those words day in and day out, while not perceiving the changes within himself.

God, I pray it is only a few more days until Arthur is feeling better. I beg you you bring this cell counts to where they need to be. Please allow his body at accept these cells and heal. Please hold his mind steady and knowing. Please stay with us and keep us comforted by your presence. Amen

https://www.gofundme.com/f/c9m88b-team-arthur?utm_source=widget&utm_medium=referral&utm_campaign=p_cp+share-sheet

Newest bathroom remodel underway