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We are a Genetic Support Foundation program that offers reliable, up-to-date information about genetic conditions.

04/09/2026

Dr. Jason Eberl and Dr. Stephanie Meredith teamed up as guest editors for the latest issue of Narrative Inquiry in Bioethics: Narrative Symposium on Parenting Children with Down Syndrome.

This special collection highlights stories from a diverse group of parents raising children with Down syndrome. As the editors note, "These stories convey that parents of children with Down syndrome are not a monolith. They are funny; they are insightful; they are frustrated; they are vulnerable and raw; they come from a range of backgrounds; they represent an array of prenatal diagnosis, postnatal diagnosis, and adoption experiences; and most importantly, they authentically love their children who also reflect a constellation of identities."

Thank you to NIB Managing Editor, Heidi Walsh, for keeping us on track and to Rosemarie Garland-Thomson for bringing us together and for her ongoing leadership as a trailblazer in disability rights!

These narratives can be accessed for free at the following link: https://muse.jhu.edu/pub/1/issue/56243

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