NS Pharma Inc.

NS Pharma is honored to attend the Annual Conference in Orlando, Florida! 💙

We're looking forward to coming together with physicians, advocates, caregivers, and the and communities for a fun-filled time of conversation and connection.

If you're attending, meet the team at Booths 8-9 from June 25-27. We can't wait to see you there!

📣 Calling the Duchenne community in Massachusetts!

The United States Volt Hockey Association offers individuals living with disabilities or chronic conditions the chance to connect with peers and experience the fun of team sports in an adaptive environment. If you know a child living with Duchenne who may be interested in the event, we encourage you to see the original post for details.

🚨 REGISTRATION IS OPEN!!! 🚨

Want to try a fast-paced team sport in chairs that can reach speeds of up to 9 mph? If you love speed, strategy, teamwork, and the chance to experience a competitive adaptive sport, this is your opportunity! ⚡🏒

Our beloved Volt Hockey Training Clinic is back for 2026, and we couldn’t be more excited to bring athletes together for four days of training, learning, on-court action, and community!

This year, our elite Norwegian coaches and athletes are returning to help players train with some of the best in the world. Whether you’re brand new to volt hockey or already playing with a team, this clinic is open to athletes of all experience levels.

📍 Charles River Campus of UMass Amherst — Newton, Massachusetts
📅 August 13–16, 2026
⏰ 9:30 AM–5 PM

Open to U.S. residents ages 7+ with disabilities or chronic conditions that affect mobility (including invisible disabilities!)

No prior experience is required, and we’ll have equipment available to borrow and customize with options like additional strapping, cushioning, headrests, ventilator mounts, joystick adaptations, and more.

Registration is $100 per athlete, and scholarships are available to help with registration, travel, and lodging.

Spots are limited, and registration closes July 1 or when capacity is reached.

Register now: volthockeyusa.org/clinic

Let’s get back on the court!!! ⚡

The is off to the races!

From now until June 7th, join in raising awareness and critical funds to support the .

Get your family and friends involved as we move together for this meaningful cause. Let's make every mile count!

The 2026 National Challenge 5K officially starts NOW and there’s still time to join us in moving 3.1 miles your way, wherever you are. Walk, roll, run, bike, swim, dance… every mile helps support individuals and families impacted by Duchenne muscular dystrophy. 💙👟

This week is all about community, movement, and making an impact together. Whether you’re participating solo, with friends, family, coworkers, or teammates, we’re so excited to have you with us for this year’s challenge.

📸 Don’t forget to share your photos and tag us throughout the week so we can celebrate with you!

Start your fundraiser: https://www.facebook.com/fundraiser/with_presence/create_dialog/?challenge_id=1525621396239945&default_beneficiary_id=241119512215404&default_beneficiary_type=charity&prefill_type=fundraiser_for_challenge

Many thanks to the for a wonderful time at the national conference!

We’re so grateful to CureDuchenne for bringing everyone together, and to the incredible families who shared their stories. We are continuously inspired by your strength and resilience and are proud to stand together with this phenomenal community.