Living With An AVM
My name’s Morgan.
06/14/2026
Five years ago today, I had a craniotomy (aka brain surgery) 🧠
The surgery removed about 75% of my AVM, but not all of it. Because of where it was located, removing the entire AVM wasn’t possible without causing more damage.
That surgery was just one chapter of a much longer journey. Since then, there have been more treatments, countless therapy sessions, challenges I never expected, and victories I once thought were impossible 🥹
Five years later, my AVM journey isn’t over, but neither am I.
Today, I’m reflecting on how far I’ve come, how much I’ve overcome, and how grateful I am to still be here.
Five years post-craniotomy. Still healing. Still fighting. Still alive on purpose 🥳💗
06/13/2026
PLOT TWIST: I’m moving. Maybe temporarily. Maybe not. Ask me again next week 😅🫠😂
So far I’ve traveled through Arizona, New Mexico, Texas, Oklahoma, Missouri, and Illinois. Next stop: Ohio, then Pennsylvania, and finally New Jersey 💗
It’s been a lot of miles, a lot of laughs, and a lot of reminding myself that sometimes the path home isn’t a straight line 💪🏼
The only way out is through 🧠
Through the hard days.
Through the setbacks.
Through the fear, frustration, and uncertainty.
There were moments when I didn’t know how I would keep going. But healing didn’t happen by avoiding the difficult parts, it happened by moving through them, one step at a time.
Keep going. The version of you on the other side is worth fighting for 💪🏼
🧠 After my stroke, there were moments I truly believed I couldn’t do it 🥹 Walk again. Recover. Keep fighting. But healing doesn’t happen all at once. It happens one step at a time. If you’re in your hardest chapter right now, don’t give up 💪🏼💗
Why I Wear Shoes👟✨
When you’ve been through a stroke, every step means something 🧠
One of the reasons I love wearing Cadence Shoes is that they combine comfort, support, and style in a way that helps me stay confident and active throughout my day. Having footwear that feels stable and comfortable makes a huge difference.
Recovery is a journey, and the right tools can make that journey a little easier 💪🏼
Neuro-ICU, just a few days after my brain surgery 🧠
I was paralyzed on my right side. My aphasia was severe, and getting words out felt impossible. Everything had changed in an instant 🥹
BUT I was alive 🥳
In those early days, survival was the victory. I couldn’t see how far I would come, and I couldn’t imagine what recovery would look like. All I knew was that I was still here 💗
Looking back at this video reminds me that healing doesn’t happen overnight. It happens one small step, one hard day, and one determined moment at a time.
Today, I’m grateful for every bit of progress, because it all started here 💪🏼
06/05/2026
🍀 Ireland, Alive-Aversaries, and a Castle Climb I Never Thought I’d Make 🇮🇪 I just shared my latest blog all about my unforgettable trip to Ireland! From the Cliffs of Moher and Blarney Castle to celebrating my 5th Alive Day on the Irish coast, this journey was filled with adventure, gratitude, and a few moments that reminded me just how far I’ve come 🥹💗
Five years ago, I was in cardiac arrest and on a ventilator. This year, I celebrated my alive-aversary with a seaweed bath and even climbed Blarney Castle to kiss the Blarney Stone! A feat I wasn’t sure would be possible after my stroke and paralysis. It was a trip I’ll never forget, and I’d love for you to read the full story.
📖 Read the full blog by visiting the link in my bio or at www.livingwithanavm.org
At first, I thought kissing the Blarney Stone was going to be too difficult as someone who’s had a stroke. But thanks to the encouragement of this kind gentleman, I found the courage to give it a try, and I did it! Sometimes all it takes is someone believing you can ☘️💚
Walking on wobbly stones is not fun 🥹 I have to be suuuper careful, or else I will roll my ankle. BUT, I get to see beautiful places in Ireland 🇮🇪💗
This is how a stroke survivor walks uphill. Not fast. Not perfectly. But one step at a time. Every step is proof of how far I’ve come 🥹💗
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