AASPIRE

NEW REPORT - Establishing a National Autistic-Led Research Agenda

Members of ASAN (Autistic Self Advocacy Network) and members of the Policy and Analytics Center (PAC), based at the A.J. Drexel Autism Institute, co-led the “Autism Research for Us” symposium.

They have now published a report with the proceedings of the symposium, available at the link:

https://policyimpactproject.org/establishing-a-national-autistic-led-research-agenda/

Invited panels led sessions on each of the four tracks at the symposium:
Biology and Neurology
Health Care
Services and Supports
Adulthood and Aging

Discussion followed each presentation. The report presents the perspectives of invited participants regarding the future of autism research, how research should be done, how autistic people can lead and guide research, gaps in research topics, and ethical conduct of research for the four tracks and cross-cutting topics.

Establishing a National Autistic-led Research Agenda - Policy Impact Project In the past, autism research has mostly been conducted by non-autistic people, and researchers have described autism as something bad that should be fixed. Describing autism in this way has negative effects on how society views and treats autistic people and may even negatively affect how autistic p...

Does your organization need training on su***de prevention for the autism community?

We are looking for organizations to volunteer to help us test out a new four-part virtual training program.

Reach out [link below] if your organization might be interested!

https://aaspire.org/2024/08/12/looking-for-community-organizations-who-want-to-support-su***de-prevention-for-the-autism-community/

The information posted on this site is consistent with the research reviewed and approved by the University of Utah Institutional Review Board (IRB). However, the IRB has not reviewed all material posted on this site. Contact the IRB if you have questions regarding your rights as a research participant. Also contact the IRB if you have questions, complaint, or concerns which you do not feel you can discuss with the investigator. The University of Utah IRB may be reached by phone at (801) 581-3655 or by e-mail at [email protected].

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Are you a person with a developmental disability? Are you autistic? Do you have an intellectual disability?

The Pregnancy Decisions App Project at Oregon Health & Science University (OHSU) is looking for people to interview for their research project about pregnancy and disabilities!

The goal of the research project is to create a phone app for people with developmental disabilities, including autism and intellectual disability.

They want to hear from people with developmental disabilities about what to put in the app. The phone app will help people be more involved in their own decisions about pregnancy. If you are interested in participating in the interview and telling your story, please email Kye Doran at [email protected] or go to www.ohsu.edu/decisions-app.

Reproductive Health Research | OHSU Reproductive health research conducted at OHSU University Center for Excellence in Developmental Disabilities

AASPIRE is currently looking for new Community Partners for our Employment Outcomes Measures project! We are looking for autistic people who are or have been employed. We will be meeting about five times between May and July 2022, and you can earn $50 for each two-hour meeting you attend. No research experience is necessary—your lived experience is your research experience!

AASPIRE Community Partner Application The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

AASPIRE has a new paper published in the journal Autism, "'[I] don't wanna just be like a cog in the machine': Narratives of autism and skilled employment." Congrats to first author, AASPIRE's Co-Director Dr. Dora Raymaker, as well as the rest of the AASPIRE team!

“[I] don’t wanna just be like a cog in the machine”: Narratives of autism and skilled employment - Dora M Raymaker, Mirah Sharer, Joelle Maslak, Laurie E Powers, Katherine E McDonald, Steven K Kapp, Ian Moura, Anna “Furra” Wallington, Chris Autistic people experience disparities in employment which may be exacerbated for individuals in skilled employment. Little is known about the experiences of au...