University of Rochester Batten Center

Today is International Batten Disease Awareness Day. 🧡

These devastating neurodegenerative conditions challenge every aspect of life—but it also reveals extraordinary strength, resilience, and love in those it touches.

The URBC remains committed to supporting research, care, and advocacy that bring hope and improve lives. Together, we will push forward for better treatments, better understanding, and a better future for those impacted by Batten disease.

So grateful and impressed by the families representing CLN3 disease, the BDSRA Foundation and the researchers from URBC and the UR-IDDRC who helped make our Rochester Batten Research Day a big success! We are all feeling even more motivated and inspired to work towards improving the lives of those affected by Batten Disease.