Blast Off Blaise

UPDATE

Doctor McNall has decided to hold off on the chemo for a week or two because Blaise’s platelets and blood counts haven’t recovered enough yet. We will start the cocktail of antiangiogenics today though.

PRAYER REQUEST

• Blaise’s bone marrow recovers from the temozolomide and begins to crank out platelets, red blood cells, and white blood cells.

🩸💪🏼 🦴

Blaise was asked to represent Make-A-Wish Oklahoma today at the The University of Tulsa basketball game. The Chi Omega Epsilon Gamma at The University of Tulsa sorority does fundraising for Make-A-Wish every year to help grant wishes. Their philanthropy helped send Blaise on his wish trip to Walt Disney World.

As the guest of honor, Blaise got to join the girls on the court as they announced their upcoming fundraising efforts for Make-A-Wish Oklahoma. (video in comments) 👇🏼👇🏼👇🏼

We would love it if you would help out the girls of Chi Omega by donating what you can to their fundraiser. $1? $5?? $20??? $100???? Anything!

Their goal is $7500.

Click the link below or scan the QR code to donate! They’re great supporters of Blast Off Blaise, so let’s be great supporters of them!!! ❤️🚀🎗️

Please LIKE and SHARE this post to get it out there to all of the Blast Off Blaise fans!

⬇️ Click here to be a generous GIVER!! ⬇️

https://secure2.wish.org/site/TR?pg=team&fr_id=7463&team_id=58288&s_src=nuclavismobile&s_subsrc=Nucl_Web_TmsQRC

UPDATE

People have been asking about Blaise’s MRI results, and until today we hadn’t met with doctor’s about it or heard any in-depth results except “the scans look good!”

Today we met with Dr. McNall. She said the scans “look wonderful.” The two lesions in his brain that they were concerned about are gone from the MRI scan. There is currently NO EVIDENCE OF ACTIVE DISEASE. 🙌🏼

Some doctors believe we *could* move forward without any kind of treatment, but with the aggressiveness of group 3 medulloblastoma we feel like we should be more proactive to avoid having to be reactive. Blaise is scheduled to begin a modified MEMMAT protocol in a week or two.

MEMMAT is an antiangiogenic and metronomic chemotherapy protocol (which means it blocks his body from growing new blood vessles that would feed tumors) and is used to treat recurrent or progressive pediatric brain tumors like medulloblastoma. It combines low-dose daily oral drugs (thalidomide, celecoxib, fenofibrate, etoposide, cyclophosphamide) along with IV bevacizumab to target tumor blood vessels. This protocol has been shown to be well-tolerated by patients for years. He would take the medicine daily alternating between the two types of chemo every 21 days and receive the IV bevacizumab every 21 days as well. He would be on it for a maximum of about 2 years because medulloblastoma recurs quickly so 2 years clear would pretty much ensure that it is gone.

As of right now, those are our next steps. We appreciate all of the prayers and support everyone offers. It is all very needed and very appreciated. We continue to fight while putting our trust fully in God and continuing to live our life. We couldn’t do it all without Him and without y’all. ❤️🚀🎗️

PRAYER REQUESTS:
• Insurance approves all medications requested
• Blaise’s hemoglobin and platelets continue to improve
• Cancer is gone for GOOD
• MEMMAT protocol is well-tolerated with no side effects or reductions in dosages