HDSA Orange County Chapter
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HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families.
06/11/2026
On June 2, 2026, the Huntington’s Disease Society of America (HDSA) joined rare disease leaders, policy experts, patient advocates, and congressional offices for a congressional townhall briefing, “The Pathway to Cures and Treatments for Rare Diseases,” at the Rayburn House Office Building.
The event featured remarks and participation from Rep. Morgan Griffith and Rep. Jake Auchincloss, who joined advocates and rare disease leaders in discussing the importance of advancing meaningful pathways to treatments and cures for rare disease communities.
HDSA thanks the Congressional Rare Disease Caucus, Rep. Griffith, Rep. Auchincloss, congressional staff, patient advocates, and rare disease partners for their participation and commitment to advancing progress for rare disease communities.
To watch the full townhall briefing, visit: https://www.youtube.com/watch?v=EgBECsklK08
with Will Forte
Help us turn up the global volume on HD awareness by posting videos, stories & photos to social media using to educate the world about the devastating impact that HD has on families this May!
Thanks to a generous match challenge, every dollar donated will have double the impact — helping expand support, strengthen services, and bring hope to families who need it most.
Awareness starts the conversation. Action changes lives.
To learn more about & the and support the HDSA's mission, please visit: hdsa.org/hdawareness
05/10/2026
We're exactly one week away! Don't miss out on this amazing event!
Register here: https://give.hdsa.org/event/2026-celebration-of-hope-dana-point/e787546
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Santa Ana, CA
92799
