Metropolitan Seattle Sickle Cell Task Force

Meet Sickle Cell Disease Program RN Care Coordinator, Hoyan Wong

This month’s community spotlight features Hoyan, RN Care Coordinator for the Sickle Cell Disease Program at Odessa Brown Children’s Clinic and Seattle Children’s. With 14 years in nursing, Hoyan is passionate about helping patients and families navigate healthcare systems while building meaningful, lasting relationships.

From advocating for equitable access to care to supporting patients through the transition from pediatric to adult healthcare, Hoyan brings compassion and community-centered care into every part of her role. She says the most rewarding part of her work is learning from patients and families themselves.

🔗 Link in bio.

We’re excited to invite Black men interested in personal growth and connection with others to join our first Growth Group.

This group is open to men with or without Sickle Cell Disease. All ages are welcome, as long as participants are able to read the materials and actively engage in group discussions.

Together, we will be reading:
Self Care for Black Men: 100 Ways to Heal and Liberate

Each participant will receive a copy of the book.

Register here: https://docs.google.com/forms/d/e/1FAIpQLSdLGokH0HpGGEWPWzHjvyaTPjTL_rGka0SWpa3GqOcUMPREvw/viewform?usp=send_form

For more information or questions Call or Text Ken West (206) 818-6474

This event is designed to support adolescents and young adults living with sickle cell disease as they prepare to transition from pediatric to adult care.

Participants will have the opportunity to tour the clinic, meet members of the adult care team, and learn about the resources available to help support them during this important transition.

RSVP: https://forms.office.com/pages/responsepage.aspx?id=Yz5pn55e7UyYpIqyj50MLUMoxf9Sk7tDmAPAufN9GMNUNjJSRlRWVTgwWUdFQkVGOVI1TzJIVjBPOC4u&origin=lprLink&route=shorturl