TSC Alliance

TSC Alliance

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The TSC Alliance® is a source of hope and support for people with tuberous sclerosis complex. TSC is a complicated disease. Too often, TSC goes undiagnosed.

05/30/2026

⭐Day 30 of TSC Awareness Month! ⭐

Children identified with TSC as babies should be closely monitored for the need of early interventional services.

This month, we’re coming together with TSC International (TSCi) and TSC organizations around the world to raise awareness, support families and advocate for everyone impacted by TSC.

💬 Share your TSC story with us in the comments and join us in advocating and raising awareness all month long!

Tune in to the TSC Global Awareness Day page and learn more about TSC Global Awareness initiatives at https://hubs.li/Q04hT0FV0.

05/29/2026

Join us for Seizure Types in TSC

Join us for the second webinar in the 2026 TSC World Conference Series, Seizure Types in TSC, on Wednesday, June 3, 2026, at 12 pm ET. This webinar, moderated by Shelly Meitzler and presented by Sam Amin, MBCHB, MRCPCH, MSc, PhD and E. Martina Bebin, MD, MPA will address seizure types across the lifespan.

Participation is not limited to conference attendees. You are welcome to join the webinar even if you do not plan to attend the 2026 TSC World Conference. We encourage you to join any sessions that may be helpful for yourself or those you support.

Register here:https://hubs.ly/Q04jlHHD0

05/28/2026

Kristen Moore says advances in TSC research have changed the trajectory of her son Jackson’s life.

Watch Kristen tell how her fear has now turned to hope: https://hubs.li/Q04jgpM-0

05/28/2026

⭐Day 28 of TSC Awareness Month! ⭐

80% of those diagnosed with TSC will experience kidney problems due to TSC.

This month, we’re coming together with TSC International (TSCi) and TSC organizations around the world to raise awareness, support families and advocate for everyone impacted by TSC.

💬 Share your TSC story with us in the comments and join us in advocating and raising awareness all month long!

Tune in to the TSC Global Awareness Day page and learn more about TSC Global Awareness initiatives at https://hubs.ly/Q04hWqxm0.

05/27/2026

⭐Day 27 of TSC Awareness Month! ⭐

98% of those diagnosed with TSC will experience one or more skin manifestations.

This month, we’re coming together with TSC International (TSCi) and TSC organizations around the world to raise awareness, support families and advocate for everyone impacted by TSC.

💬 Share your TSC story with us in the comments and join us in advocating and raising awareness all month long!

Tune in to the TSC Global Awareness Day page and learn more about TSC Global Awareness initiatives at https://hubs.li/Q04hWfb60.

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Telephone

Website

https://linktr.ee/tscalliance

Address


8737 Colesville Road, Suite 400
Silver Spring, MD
20910

Opening Hours

Monday 8:30am - 5pm
Tuesday 8:30am - 5pm
Wednesday 8:30am - 5pm
Thursday 8:30am - 5pm
Friday 8:30am - 5pm