Benson Strong

Benson has been doing awesome lately. He had a 3 hour NeuroPsychology appointment where they assess cognitive delays and differences as a result of his tumor. We have been so thankful to have an amazing psychologist who has given us so much insight to how Benson thinks and learns differently over the past few years. One thing she said is she loves how Benson advocates for himself, she asked him if he could write a sentence and he said no … she was so proud of him for expressing that without just staying silent or melting down. He really has come so far in the past 2 years since we saw her last. It was also “Cape Day” at CHOA, it almost brought tears to my eyes seeing him walk out in that green cape … 4 years earlier we were drapping a cape over him in an ICU bed.

School is going great, Benson loves being in person with his classmates. We had his IEP review last week and I feel so lucky he is surrounded by amazing teachers and staff at his school that support him in so many ways. Benson’s parapro meets him outside every morning to carry his backpack for him, but starting next week he is going to walk in by himself. It amazes me that 3 years ago I was bringing him into school with a wheelchair. He is getting so strong and more independent everyday.

Benson is looking forward to Halloween, he is planning on being some Spider-Man villain - I can’t keep up these days! Video games fill this house, dancing, tons of laughter, good vibes and finally that little bit of normalcy we have missed for so long 🥰

Every year we walk with Pediatric Brain Tumor Foundation - Southeast Region in the Starry Night Walk to raise money towards awareness and a CURE for Pediatric Brain Tumors. Both last year and this years event have gone virtual due to Covid. We hope that you will join our virtual team, make a pledge to walk and help raise money for this amazing foundation!

We also have a T-Shirt campaign LIVE, through this a percentage of each T-Shirt sold will go directly to Pediatric Brain Tumor Foundation under the team!

https://www.bonfire.com/bensonstrong/

https://team.curethekids.org/team/348705

#BensonStrong | Bonfire Buy merchandise that supports Pediatric Brain Tumor Foundation. Featuring Charcoal Premium Unisex Tees, professionally printed in the USA.