All Things Epilepsy by Laura Beretsky

Anybody with drug-resistant epilepsy should check out Epilepsy Sparks interview with Dr. Morcos, who discusses his Brain Surgery Decision Map. More on my Substack:

The Brain Surgery Decision Map Neurosurgical technology advances make successful surgical treatment of drug-resistant epilepsy more accessible

March 26th is Epilepsy Awareness Day, aka Purple Day, a perfect occasion to get the National Plan for Epilepsy Act passed by Congress! Call your legislator now. More on my Substack: https://lberetsky.substack.com/p/happy-purple-day-c43

November is Epilepsy Awareness Month. You can recognize it in Massachusetts by taking this important action step to bring An Act Relating to Seizure Disorders in Schools, bill H4641 closer to the finish line. Many of you have seen me post about this before. This legislation is closer to passing than ever. Let’s get it to the finish line! More info here: https://lberetsky.substack.com/p/honoring-epilepsy-awareness-month

Today is Sudden Unexpected Death in Epilepsy, or SUDEP Action Day

Here’s an important act for anybody in Massachusetts. The Massachusetts legislature is considering the SUDEP Education Prevention Act. The proposed legislation requires that the Massachusetts Department of Health conduct a statewide campaign to raise public awareness about SUDEP and other epilepsy-related mortalities. The bill also mandates that the Department of Health develop informational resources on SUDEP to share with epilepsy patients, their families and health care providers.

Only 2% of proposed Massachusetts bills get passed into law, but pressure from constituents makes a difference. If you live in Massachusetts, please contact the Joint Committee on Health at [email protected] and ask them to pass the SUDEP Education Prevention Act. Be sure to include the formal title of the bill and the bill number in the subject heading: An Act Relative to Education and Prevention of Sudden Unexpected Death in Epilepsy and Other Related Epilepsy Mortalities, HB3961. More on my blog: https://lberetsky.substack.com/p/an-important-act-for-sudep-action