Jax Strong

Jax Strong

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Disconnected Pancreatic Duct Syndrome DPDS circumferential disruption continuity of pancreatic duct.

02/13/2024

Superhuman update:

All appointments went well. Healing perfectly, no other pains or issues. We have to work on getting his sugars where they should be this is tricky with him, he is high energy and tends to drop at dosing. We changed his numbers again and just have to keep on keeping on and get these numbers right. It was an amazing visit. Met a few new Tpiat friends today at appointments saw one our first friends. All in all little dude is doing amazing 😌😌😌😌🤟🤟🤟🤟🤟🤟 we finally arrived home just a little bit ago.

02/12/2024

Finally touched down in Ohio! Waiting on the family to log on and play before settling to bed ❤️ check ups tomorrow

11/16/2023

We were able to go home last night about 3am. He has to follow up for blood work and antibiotics today with his p*p. We are currently waiting on the nurse to call us back. As well as Ohio to call us back. He is doing better but still exhausted. Temp came down to 98.7. We are grateful for each prayer, text, call, message all of you have given! From the bottom of one tired mamas heart thank you!

10/19/2023

Our little superhuman has just received his make a wish certificate ❤️❤️❤️❤️❤️ he is over the moon. The wish is suppose to be filled in 2024! He has done very well since returning home from his six month follow up!

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Sumter, SC