Rettland Foundation

Hello! It’s been a while. We’ve been busy working with our families traveling with research and finally have a little extra time for some fun! You may or may not know that Claire, the force that drove this organization passed away earlier this year. To honor her spirit to help families in Rettland, we are organizing an ongoing acts of kindness campaign and we need your help. Do you know of a family living with Rett Syndrome that could use a virtual high five or a little extra love? Send us an email at [email protected] and we will try to help. A cup of coffee or a dinner can go a long way when you are tired in rettland and we hope to bring a little light through this effort, thank you for joining us!

Hello again! We’ve been busy supporting many families as they come and go from study sites across the country and haven’t gotten to social media for a bit.

While some studies have paused enrollment, others have not. In fact, multiple studies are rolling into open label extensions. There’s a lot still happening - which is why we need your help. At this time, we’ve had to pause sending out care packages, but now more than ever, we want to be putting good into the world.

We still want to send some extra love to those bravely participating in research for Rett syndrome So we are asking for your help. While we are all adjusting to spending time at home, we’d be honored if you would take a few minutes to write a note of encouragement or appreciation that we could pass on to these research heroes. Colored pictures work too! Please no personal information such as phone numbers or last names. Mail to Rettland Foundation PO Box 1282 Temecula, CA 92593

THANK YOU FOR YOUR SUPPORT!