Rare Patient Voice

Rare Patient Voice

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Wes Michael, President and Founder
We connect patients and caregivers with research opportunities.

Let's Get Started - Rare Patient Voice - A Konovo Company 07/12/2026

Have you or a loved one been diagnosed with Alopecia Areata?

We are seeking: Adults ages 18–64 diagnosed with Alopecia Areata Caregivers of loved ones ages 12–17 diagnosed with Alopecia Areata Participants who qualify and complete a 60-minute interview will receive $120 as a thank-you for their time.

In addition, some participants may be considered for future:
📸 Professional Photo Shoots
🎥 Video Shoots
🎤 Speaking Engagements Your experiences can help researchers better understand the real-life impact of Alopecia Areata and contribute to future awareness efforts.

Start your journey here and sign up today: https://www.rarepatientvoice.com/rp/GOLD
Member already? Send us a DM with your email and "AA" and we’ll check your eligibility right away!

Let's Get Started - Rare Patient Voice - A Konovo Company Let’s Get Started Are you a patient or family caregiver with something to say? Make your voice heard by participating in paid surveys, interviews and online communities! Start talking to the right people. It's free! We accept rare and non-rare diagnoses! In celebration of our 10th Anniversary our ...

07/10/2026

Navigating life with Chronic Spontaneous Urticaria (CSU)?

You’re not alone and your insight is valuable. We’re looking for individuals willing to share their experience and insights. It starts with a short interview.

If selected, you may also be considered for future opportunities like video shoots, photo shoots, and speaking engagements, some of which may include travel.

If you’re interested in being part of upcoming projects, click below to join: https://www.rarepatientvoice.com/rp/CSU11546

Already a member? DM us your email + the study name, and we’ll check your profile for you.

Want your practice to be the top-listed Clinic in Towson?
Click here to claim your Sponsored Listing.

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711 Hampton Lane
Towson, MD

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm