Cutaneous Lymphoma Foundation

Don't forget to register for the upcoming Online Networking Groups!

Engaging with our online networking groups can be helpful when you have cutaneous lymphoma or a loved one who does. These groups provide an opportunity to connect with others who may have similar experiences and offer a supportive space to talk about it.

Upcoming dates:
Tuesday, July 7, 7-9 pm (ET) bit.ly/49jPZan
Thursday, July 9, 12-2 pm (ET) bit.ly/4n9Dunr
Tuesday, August 4, 7-9 pm (ET) bit.ly/4dQiRZi
Thursday, August 13, 12-2 pm (ET) bit.ly/4fdH3Hr

Holly Priebe, Co-CEO of the Cutaneous Lymphoma Foundation, attended the World Congress on Rare Skin Diseases (WCRSD) and the RareDerm member meeting. "It was incredible to see so much physician-led focus on rare skin diseases worldwide. And as always, I was inspired by the RareDerm community’s dedication to making change through collaboration."

Thank you to International Alliance of Dermatology Patient Organizations - GlobalSkin and the World Congress on Rare Skin Diseases for including the Cutaneous Lymphoma Foundation in this opportunity.

Based on your feedback, we’re excited to launch a new Care Partner Facebook group!

The Care Partner group is a private, compassionate space for family members and close friends of those living with cutaneous lymphoma, people who are walking alongside a loved one through their journey. Whether you’re helping with day-to-day needs, offering emotional support, or simply being a steady presence through uncertainty, this group is designed for you. It’s a place to connect with others who understand the unique realities of supporting someone with cutaneous lymphoma.

We look forward to building a supportive and welcoming space together.

Join: Cutaneous Lymphoma Care Partner Group

PLEASE NOTE: We are glad care partners are excited about this new group. When requesting to join the group, you will need to scroll down to read and accept the group rules before clicking on submit.