The Kith Collective

Today's the day! Join the EveryLife Foundation for Rare Diseases webinar at 1 PM ET.

On January 27th at 1pm ET, the EveryLife Foundation, in partnership with Biotechnology Innovation Organization - BIO , the National Health Council, and PhRMA, will introduce a transformational resource, the “Guide to Patient Involvement in Rare Disease Therapy Development.”

Join us for this special webinar to learn more about this new resource and how it can further embolden your engagement with partners within the therapy development ecosystem. This landmark tool was developed by nearly 100 community leaders over the past year during the PFDD Rare Disease Compendium Roundtables, a series of four virtual workshops that considered the application of FDA Guidances across four lifecycle stages of medical product development.

Register today: https://bit.ly/3HSHItS

Click here to take our survey: https://www.research.net/r/surgicaloptions.

This survey is open to women living in the U.S., ages 18 and older, who have been diagnosed with stage I, II or III breast cancer in the past 5 years. This survey is also open to women at high risk for breast cancer who have had or are planning to undergo a prophylactic mastectomy. All information submitted will be aggregated and de-identified. Survey respondents may be invited to participate in additional opportunities to inform research.

Views and Perspectives on Surgical Care for Breast Cancer Your experience can help inform the surgical options other women might have.

We have been part of a unique collaboration between the Depression & Bipolar Support Alliance and the Milken Institute Center for Strategic Philanthropy to develop the first-ever peer-designed survey to elevate the lived experience of people with depression and bipolar. The survey launched on August 1, 2018 and has attracted more than 700 responses in the first 24 hours. If you, or someone you care about, experience depression or bipolar, please share your perspective via this anonymous survey. https://www.research.net/r/supportingwellness

Parent Project Muscular Dystrophy was our very first client and we had the honor of writing the report on their patient-focused drug development "Compass" meeting. It was a great privilege to work alongside founder Pat Furlong, Annie Kennedy, Ryan Fisher, and members of the Duchenne community on this project. The report is now available online:https://www.parentprojectmd.org/wp-content/uploads/2018/07/PPMD_Compass_Meeting_Report.pdf