Harry's House

Not all respite is the same.
I learned that very quickly as a parent.
You don’t just hand your child over and walk away. You are trusting someone else to understand their needs, recognise when something isn’t right, and know what to do next.
And for some children, shared care just doesn’t work.
This is the third article in the “When Care Never Stops” series, exploring why respite for children with complex needs is different, and why that matters.

Read the article here:

Not All Respite Is the Same: Supporting Children With Complex Needs Article 3 of the “When Care Never Stops” series In the first two articles in this series, I talked about what it means when care never really stops, and the role families play in holding much of that care together. There is another part of this conversation that is just as important.

When you are caring for a child with complex disability, care rarely stops.

Seizures can happen without warning. School days can end early. Hospital visits, therapies and constant supervision often become part of everyday life. Parents learn to manage medical needs, advocate with professionals and hold together the full picture of their child’s care.

Respite is sometimes described simply as giving parents “a break”. In reality, it plays a much deeper role in helping families sustain the level of care their children depend on.

This article is the first in the “When Care Never Stops” series exploring the importance of respite for families caring for children with complex disability.

When care never stops, respite is not a luxury. It is part of what makes sustainable care possible.

When Care Never Stops: The Importance of Respite Article 1 of the “When Care Never Stops” series In many homes across Australia, parents of children with complex disability are providing care that never truly stops. They manage feeding tubes, administer medications, respond to seizures, support mobility, monitor sleep, and remain alert to risk...

Families are sometimes concerned when they hear that something has been “reported” under the NDIS, and it’s natural to assume this means there is a problem.
We know this can feel worrying, especially when your child’s care has been stable for a long time.
We’ve written a new article to explain what reporting actually means, what usually happens after a report is submitted, and what it does, and does not, mean for families.

When We Report Under the NDIS: What Families Don’t Always See | #Harry's House Families are sometimes concerned when they hear that something has been “reported” under the NDIS, and it’s natural to assume this means there is a problem. We know this can feel worrying, especially when your child’s care has been stable for a long time. We’ve written a new article to exp...